Tuesday, January 20, 2009

Radiation #1 Today

I start radiation today. I had the run through yesterday. They basically took x-rays and such to make sure everything was ready to go. They needed to make sure that calculations are correct and positioning and stuff. I didn't see the x-rays, but we're starting today, so we must be good to go. I lay on a table and there are lasers in the walls that align with my tattoos. They said that, and I thought 'yeah right, lasers in the walls,' but its true. One laser to my left, one to my right, and when I look between my feet, I see the third. So they kind of shimmy me around until I'm in the right spot. Its kind of comical.
They also had me meet with a social worker that works in the the cancer center building. She said they believe in treating "the whole person," so emotionally as well. She is a counselor who specializes in oncology and specifically young adults. We talked for a while, she just wanted to get to know me better and make sure I knew her services were available to me. I really liked her, and she basically hit on everything that bothers me, or I feel guilt over, or am curious about. She talked about the stresses of having little kids in the middle of all of this. She just looked at the ages of Max & Cannon and said "the two and a half year old throws fits because he's two, not because you have cancer." I started laughing because I had hardly spoken and she already knew that was a biggie. It was just nice to know that she had heard the exact same concerns from other people my age in my situation, and its normal. She was very reassuring. She also emphasized taking care of myself, and making sure I continue to do the things that make me happy. She said it may sound selfish, but its true. She used the airplane scenario. When you fly, they always tell you to put the oxygen mask over yourself before your children. I always think that's absurd, I'll totally put it on them first. But, if you do that, how are you going to get your children off the plane when you can't breathe? Take care of yourself first, or you're not being the parent you can be. Makes sense. She also said that if Brent wants to talk, she's available to him too. This is the FIRST time Brent has had people outside of our friends and family offer to help him. There should be more for spouses/partners/friends. We can call, or just tell the nurses while I'm in radiation that we'd like to talk, and she'll make time. Aaahhh...
Saturday I went to a doctor that was recommended to me by a family friend. I didn't really even know what he did, I was just told that he had heard about me, was a very warm person, and thought he could help. To make a long story short, he does acupuncture, as well as naturopathic medicine, basically Chinese medicine he said. I hated it. I don't know what it was about the whole situation that bothered me, but I was a little freaked when I left. He wasn't warm, he wasn't rude, but he wasn't warm. He didn't know who I was, he didn't really want to hear who I was, and I felt like he basically said "do this or your cancer will come back." No, it wasn't in those words, but that's just how I felt. I don't very often get freaked out, but I just had to get out of there all of a sudden. You could basically get me to do anything if you're going to guarantee me that cancer won't come back, so maybe I just felt taken advantage of, I don't know. Anyway, I won't be back to see him anytime soon. A family friend of ours says that your spirit will tell you what you need to do, and I guess my spirit was definitely against that guy. :)
So, radiation begins today, everyday at about 4pm, for seven weeks. I feel kind of excited to get going. Maybe the excitement is more because President Obama was sworn in, but I'm ready to go.
Oh, I need to tell you that Brent put together a book for me with pictures and the blog, and the comments. Its amazing. I cried, my dad started to read it, he cried, mom read a few, cried, Debbie looked at the first page and cried. :) Its very cool, and possibly the best thing anyone has done for me.

Monday, January 12, 2009

I have energy!!


My eyelashes are growing!!! My left eye kept more of them than the right eye, so its been a little uneven which I'm sure no one but me even notices. The right eye though has some little tiny short lashes that are coming in, they're gray, but they're there!! Woo hoo!! I'm hoping the hair on my head is soon to follow. I have some individual hairs that probably never would have fallen out that were like an inch and a half long, but they would stick straight up in the air, so we trimmed them. Brent re-buzzed me so its all one length. We'll see how it comes back in. Gray & curly is my guess.
I don't think my energy level is all the way back to "normal," but its close. I get through my normal day pretty easily, including racing Max in the backyard or wrestling with both of them, but after the little dudes go to bed, I'm done. Although, before cancer I was pretty well done after they went to bed, so its hard to tell. The only doctor like thing I have this week is a trip to the dentist on Wednesday, and I'm pretty sure normal people do that, so I can handle that one. Although I did play the cancer card last time I was there to avoid getting a cavity filled, so I think this time there will be shots. Dang it!
We had a great weekend visiting my grandparents for a late Christmas, and then mom and I went shopping. I haven't been shopping in a year or so, (seriously, not exaggerating), so I loved it. Total adrenaline rush from spending money. Sad, materialistic, true. A friend of the family also made a very cool cake for me. It was a congrats for being done with chemo cake. :) It was awesome. It had three tiers, beautiful colors, and pictures from the blog on it. Way more cake than we could eat, but we tried. I was very impressed, very professional. I have a picture of it somewhere, if I remember when I get home I'll put it on here. Thanks Jeri!

Wednesday, January 7, 2009

Sooner than later?

I wrote out a whole new post after meeting with the radiation people on Monday, but somehow the computer deleted it. I'm sure I did nothing wrong, it was all the computer.
The radiation people are some more smart people and I like them. There's the main doctor, the x-ray technician girl (don't know her title), physicist and jr. physicist. I didn't know I would get to meet the physicists or that they would even be involved in all of this, but that was exciting for me. I got to again wear a sweet hospital gown and robe. Regardless of how many doctors offices I have visited, all the gowns look the same. Flattering and stylish. Since they're radiating the top half, I only had to take my shirt off. Lucky me. After I had the robe on, I headed to waiting room #2. This was sort of creepy. I don't know if you've ever seen the movie "Defending Your Life" but as soon as I looked at the waiting room, I flashed to that movie. It was one of those that was on all the time, so you watched it when there wasn't anything else good. Anyway, it basically had people (all in robes) that were waiting to hear if they were going to heaven, or going to be sent back to Earth to try again. I walked into this waiting room and there were like 5-6 people, all in matching robes, and totally silent. There were puzzles, magazines, juice, and silence. It was weird. Included in the 5-6 people was this tall guy. I'm assuming he's tall because his robe was way too short, and he must have needed radiation over his whole body, because he didn't have anything on but the gown. He was very comfortable in the gown, no modesty there. I made a point to remember the chair he was in and never sit there.
Once it was my turn I laid on a table for almost an hour while they lined me up, and built molds of my chest and such. I'm guessing these pieces won't be going in a museum, but it was interesting to watch it all. The mold consists of 2 layers of saran wrap, a plastic thing that forms to you after being in a water bath, vaseline, and some stuff that has the feel and density of skin. Apparently I wear this apparatus while they're zapping me and it brings the radiation closer to the skin. The lymph nodes is what they're mainly aiming for, and the ones they're aiming at are right under the skin. This also means I will have some intense burning of the skin. It will turn red and peel. If it gets to the point of oozing (doctors word, not mine), then maybe we'll change some things. Um, maybe we'll change some things? Maybe? I really don't think I'll like oozing. Just a hunch.
The doctor mainly emphasized fatigue in all of this. She said its not something to just push through, which is what I have a tendency to do. She said I've never been, nor will I ever be this tired again in my life. Cool. The good news was that we might get to start this whole process sooner than later. Because I've handled chemo pretty well, she felt like if my energy is fully back in a couple of weeks then we can get going. It would be very nice to get this stage going, over with sooner, etc. We'll see if that works out or not. If I'm good to go, then I go back for a dry run (or an undress-rehearsal as Debbie called it, teachers have such lame humor), and then the next day we would start. We'll see!

Saturday, January 3, 2009

Life after chemo

Ok, no Good Morning America. They never called, as Jerrad says, we're old news. :) Good thing, I would have watched myself and felt like a jack ass, so I'm good in my own little world.
It still seems a little weird that I don't have another chemo in a week or so. I am used to it I guess. What a sad thing to get used to. I have this new norm of feeling good for about a week, or less, and then feeling like crap again. Today I was thinking I'd go for a run, which usually is followed by a thought like "that seems pointless, you're just going to feel like crap again." But I get to feel good for a while. Weird. (I still didn't go for a run) :)
I have realized that this cancer business is never going to go away. Ok, the cancer cells have gone, but the word is always going to be here. I for some reason thought that once the chemo was done, that it would be easier, that I wouldn't think about it all the time, it wouldn't consume me. As soon as there is a lull, thoughts of recurrence and fear just sink in. I'm sure it won't always be that way, but I wonder how long until I can think about something else. I think Brent's tired of having cancer conversations. I'm tired of having cancer conversations. I'm tired of being defined as the girl that has cancer. I talked to a survivor the other day and she said it took her 2 years until she didn't think about it constantly. Really, two years!? Ugh. I will seek professional help if it hangs on that long.
I'm slowly learning more about tamoxifen. It can cause some more menopause like symptoms, fabulous. It can put me into menopause, very fabulous. It can cause some depression, it can cause weight gain, etc etc. These things seem minor when you compare them to having cancer and dying, but good God, one more side effect just sucks.
I feel good today and I'm excited to keep feeling better. I'm excited to have hair, and I haven't cried today. Look out world, things are looking up.

Tuesday, December 30, 2008

We've moved to TV!!

My parents were interviewed by the Bend local news. I'll again attempt a link, but if it doesn't work, then copy and paste. It turned out good, I cried. For the fourth time in three days. I'm on a roll.
I feel really good today. As long as I take it easy, I'll feel good tomorrow too. Jerrad, Jenn, & Sam went to the aquarium with Drew, Tanner & Conner and took Max. I wanted to go, but I was afraid I'd end up overdoing it and feeling crummy tonight or tomorrow. I was bummed, but I'll live. Its the last time I'll have to think about that part of things!!
So I woke up this morning to a call from Good Morning America. That was trippy. They want to talk to my dad and I and possibly have our interviews on TV. Ha ha ha. I'm supposed to hear from the guy again today, so I'll let you know if any of it actually pans out. Lisa says my dad was meant for the stage, he says when the camera crew from Bend was in their house he was like "uh..." and mom talked and made sense. Hard to imagine my dad at a loss for words...
Ok, I don't know about the link, but I'm sure Randy & Nell or someone that is smarter than me can put the link to the story on one of the comments. (hint, hint, please)
Go to KTVZ.com and you'll see it on there.
I have the coolest parents. Total rock stars... I think its pretty cool that at the bottom of the article if you read it, rather than watch it, people have put comments and most of them are former students of my dad.

Monday, December 29, 2008

DONE DONE DONE DONE DONE DONE

If I could do an exponent on the word done I would show how exponentially excited I am. :) How's that for math teacher-ese? I feel pretty good, a little out of it, but not bad. I don't have to ever have chemotherapy again... (probably and hopefully). The nurses in the chemo room are amazing. They work very hard to make you as comfortable as possible, and they did. They have DVDs you can watch, games you can play, popsicles, coffee they'll fresh brew, crackers, warm blankets, etc. And they're so nice. They remember my name, which is so nice to have knowing the number of people they deal with. They look you in the eye and ask how my kids are, and listen to stories I think are funny, they probably don't, but they laugh anyway. They were awesome. I will be happy to not see them for a while because it means I don't have to go there anymore, but I so appreciate their warmth.
A woman came in today while I was waiting to be done and she was crying. She went straight to a nurse (Robin) who dropped everything and gave her a hug. The woman was obviously really upset, and not being able to hear any of the conversation, I invented my own scenario for some reason. All of a sudden I was convinced that her husband had died, and I started crying. Good God, I didn't even know what was really going on, and I'm crying. I think it was just another reminder of the reality of cancer. I'm in my last chemo, I have my 76% (still wish that was higher), but its very real and very scary, and apparently this woman pushed me over the edge. Luckily, Brent walked in shortly after, and I recovered.
On an entertaining note, I don't know if you read Nell and Randy's comment on the last post (Big Time), but apparently our newspaper article is spreading. :) Pretty weird. Its somewhat embarrassing. The Bend news station actually went to my parents house and interviewed them. Who knew the fifteen minutes of fame would come from breast cancer!?
Christmas in Tillamook has been wonderful. I got a beautiful coat from Rick & Debbie that is bright and makes me feel colorful in spite of being so pale. We looked over old Christmas pictures and I started getting really excited to have hair again. For someone that never wanted to do their hair, that surprises me, but I'll be stoked. I used to tell people I had brown hair with gray highlights and judging by the fuzz on my head I think we're looking at gray with brown highlights. :) There are some brown suckers up there though!! I don't know how long they'll last, but I'm hoping they're fighters. Ha!
I am anxious to start radiation. I am more excited to have some time without doctors, but I'm ready to start and get it over with. I'm sure it'll get old and hectic, but I want to get going.
I also went to church yesterday here in Tillamook. I have never been a church person, but Pastor Peggy has been incredibly kind and I wanted to go see and listen to her. I got a big "hi Mo!" at the beginning. It was incredibly welcoming. Max got uncomfortable pretty early on, so he and Brent went to read books in the other room and Debbie and I listened. We both cried twice. She said a prayer for a number of people including myself, that was first cry, then she said some really nice things about teachers. Cry #2. For those of you that haven't known me my whole life, I don't cry. I used to make fun of Lisa for crying all the time. I now cry all the time. I like to think I'm developing much more compassion in all of this, and that's why I am more emotional, but maybe I'm just a wreck who can't get it under control. Grandma Madge used to tell me to just cry because it always makes you feel better. She was pretty smart, I'll go with that. I love you all (crap, that made me teary eyed again), thanks for all of your positive energy, I'll keep you posted on how the tattooing goes. Have a Happy New Year!! I may sleep through the ball dropping, but I am anxiously awaiting 2009.

Friday, December 26, 2008

Big Time

The Klumphs and the Simes have hit the big time. We were a cover story on Christmas Day for the Albany Democrat Herald. Pretty much the biggest paper in the world. It rivals the New York Times. Ha Ha. I'll put a link at the bottom to the article so you can check it out if you're bored and need something online to look at. It starts off with calling dad "short and jolly." Hee hee.
There's another little part in the actual paper, but not online that mentions the pink t-shirts that my Aunt Linda made. My favorite "pink t-shirt picture" was from the Mohans who took the shirts to Yellowstone. There were doctored pictures with buffalo and moose wearing the tie-dye. It was awesome. Anyway, Aunt Linda, Mohans and my student body-guard Logan got a shout-out in the paper too.
Our Christmas #1 is done, we were going to Aunt Linda's house, but the snow in Portland area made that rather difficult, so my parents and Amos came here. We had a great time. Santa came and ate some cookies, we played some serious board games, I had a few tom & jerry drinks, it was very relaxing. Brent dominated the board game world, enduring my dad and Amos's creative accusations. Those of you that know them can imagine. :)
We are headed to Tillamook this evening for Christmas #2. Tillamook Christmas is always just as relaxing and fun as Sime Christmas, and always involves more food. Mainly seafood. Brent and I will leave Max & Cannon in Tillamook on the 29th and come back to Corvallis for the day for CHEMOTHERAPY #8 aka THE LAST ONE. What I have to remember is that it takes a couple days (or more) to recover so its not really "done" until a few days after, but wow I'm excited!!!
I also met with a physical therapist this week to discuss exercises and stretches I can do to help with some lymph node cording in my armpit (I'd explain this, but its gross) and to reduce likeliness of lymphedema. The stretches feel really good, so that was interesting. I go back sometime the first week of January to see if its helping and maybe for additional stuff. I also go to the radiation master on January 5th. They'll tattoo me to mark where to aim the radiation treatment. I always kind of wanted a tattoo... Not exactly what I had in mind. Everybody that I talk to in the medical field in Corvallis says the radiation doctor is really good, so I feel pretty good about her. I'm ready to be done with the chemotherapy stage and move onto the next one. I am very excited for my hair to grow back. I look the sickest right now that I have through this whole ordeal. Eyebrow hair and eyelashes are nearly non-existent. It sucks. I catch a glimpse of myself in the mirror and its not a positive reaction. I just don't like looking sick. I don't feel sick (most of the time) and I don't need a pity look from strangers because I now look sick. Oh well, there are worse things. Have a great New Year!!

Ok - I tried to get the link to the article, but I can't seem to make it happen. So, go to democratherald.com, then there's a place to search on the left side. Search in the archives for Klumph and the article should show up. "A caring equation in SH." Witty! Either that or there will be seven links listed below because I actually did know how to do it, and kept posting the link over and over and over again. Totally possible.